Day 1: Maybe I burnt my tongue...

I woke up with burning eyes and my tongue stuck to the roof of my mouth. It felt like I had burned it. I asked a coworker that day if he'd ever burned his tongue with curry - because that's what I'd eaten for dinner the night before and I'd gone to bed without brushing my teeth. It hurt, and I couldn't taste...or things tasted strange and bland and metallic-like. I had a bad headache all day, particularly on the right upper side, behind my right ear, below my right jaw, and the back right of my neck. I found it difficult to eat, but wasn't quite sure why, so I just gave up and didn't finish my dinner. Things tasted strange/bad and my mouth just seemed too tired to keep eating, even though I was hungry. As the day progressed, I felt more rotten and achy. I assumed I must be getting the virus that had been going around and I went to bed early.

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Days 13-14: DIY Eye Taping

Muscle function continues to improve. I've been able to move my lower lid several more times, and then I can't. It comes in spurts. My face is clearly less droopy, more taut. My upper lid now participates slightly when the other eye is blinking involuntarily. I can slightly tighten my whole cheek, not just the corner of my mouth. Super encouraging and hopeful! I worked a 12 hour day on Saturday...I know I shouldn't have, but we had an exhibition and there was work that had to get done. I was wiped out, and yesterday and today (thankfully days off work, for rest) I've been laying low, not feeling so great... The virus that created the conditions for the suffocated facial nerve is running it's course (just like it has with others around me who had the virus, though not with my same complications). It's moved from bad headaches and fatigue to include head and chest congestion. I slept 13 hrs last night! The spot of nerve damage behind my ear is still painful. M...

Day 8: Successful Eye Patch Innovation

Today was a good day, even though I felt kind of lousy most of the day - mild headache, tired, lower eyelid twitching annoyingly - but the rest of my face not moving, random throbs of pain on right side of face, neck and head. Way better than I was feeling Sunday! The verdict is still out, but I think I can now do slight pumping open movements with my eyelid that I couldn't do before! And it seems my ability to twitch the corner of my mouth is a bit stronger today! I picked up the results of the CT scan today and the report says everything is normal! Praise God! So it must have just been the virus, or not enough corticosteroids, or toxins/adjusting after my structural alignment stretches... Who knows - I just hope that pain never comes back! After some trial and error I think I've invented an excellent Bell's Palsy DIY Eye Patch! That last one I made was better than a completely opaque one, but I still couldn't see through it well. Plus, by trying to be less con...

Day 50 - Prednisone Was The Culprit!

Oh My! What a week! I'm so thankful that none of this has landed me in the hospital here, because I just got to see what those are like, and what they are lacking! One of our artists almost had a heart attack and I had to take her to the emergency clinic and spent the next couple long days with her there, trying to advocate for her. I'm exhausted, needless to say, and thankfully she was stabilized and able to return home to better care. While I was at the hospital, my neurologist came by to check on our artist, and he recognized me and asked how I was doing. When I told him how exhausted I've been, with super low energy, he said that was because I stopped the Prednisone too quickly and so my adrenal glands were struggling to function! But he had specifically told me NOT to taper them, that there was no need, and he didn't prescribe a dose that included tapering! AGH!! Sure enough, I checked my notes here, and the dates (so thankful I had this record!) and right when ...

Rachel's Bell's Palsy Journal

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